MONDAY

Today we will get back to a normal practice. 


Also, this week when we play Jesuit we are having "Sadie's Night" and will be raising money for Sadie Bono, a 3 year old girl that lives in the Lake Highlands area who has a condition known as Pfeiffer Syndrome.  Here is a little more information about Sadie:

Sadie is a smart, funny three year old.  She is cognitively normal and enjoys reading books, playing with puzzles, singing and having dance parties with her sister. 

Sadie has Pfeiffer Syndrome (type I), a genetic skull disorder affecting approximately 1 in 100,000 individuals.   Her skull sutures prematurely fused in the womb causing her face and head to grow abnormally.  Her eyes are normal sized, but she does not have proper bone structure surrounding them causing them to appear large.  Her nasal airways are severely narrowed, making breathing difficult.  Therefore she breathes with the assistance of a tracheostomy tube. 

Because of Sadie’s age, she does not understand her medical condition, although she knows she has a trach and notices that others do not.  Sadie has frequent doctor’s appointments, tests and hospitalizations.  She pretend plays doctor often as this is a huge part of her life.   

Sadie looks different.  She attracts stares and questions most places we go. It is important to our family that people see and like Sadie and others with facial differences just as they are.   The more exposure we bring to facial differences the more understanding our community will be.